Ethics and Humanitarian Research: Generating Evidence Ethically (PREA Conference 2019)

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Ethics and Humanitarian Research: Generating Evidence Ethically

Conference held at The Fawcett Event Center,
The Ohio State University, Columbus, Ohio, USA

25-26 March 2019


The PREA research project is funded by Elrha's Research for Health in Humanitarian Crises (R2HC) Programme, which aims to improve health outcomes by strengthening the evidence base for public health interventions in humanitarian crises. The R2HC programme is funded by the UK Government (DFID) and the Wellcome Trust.

Additional funding for the PREA Conference was provided by The Ohio State University Center for Bioethics.


Monday 25 March

Session 1

Welcome and Introduction
O'Mathúna, Dónal; Weisenberger, Jan; Gebreyes, Wondwossen; Melnyk, Bernadette
Description | Abstract | Full Text PDF | Video

Session 2

Keynote 1: Emphasis on Beneficence in Research with Vulnerable Populations: Developing an Assessment Tool for Researchers
Pillai, Veena
Description | Abstract | Full Text PDF | Video

Session 3. Oral Presentations 1: Participant—Researcher Tensions

Paper A. Unexpected and dangerous situations cropped during field research data collection for public Health Research: An Experience Sharing
Sudhakar Narayan, Morankar
Description | Abstract | Full Text PDF | Video

Paper B. 'Nobody wants you here' - Lessons learned (the hard way) in researching medical humanitarian networks in Syria and Ukraine
Roborgh, Sophie

Paper C. Ethical challenges when conducting research in rural, post-conflict areas: experiences from South Sudan
Mugo, Janet Wanjiku
Description | Abstract | Full Text PDF | Video

Session 4

The Post-Research Ethics Analysis (PREA) Project
O'Mathúna, Dónal; Van Bortel, Tine; Upadhaya, Nawaraj; Mulate, Yimtubezinash Woldeamanuel; Hanafiah, Ainul; Martin, Steven
Description | Abstract | Full Text PDF | Video

Session 5

The PREA Tool
O'Mathúna, Dónal
Description | Abstract | Full Text PDF | Video

Session 6. Oral Presentations 2: Gender and Reproductive Health

Paper A. Improving Women's Autonomy in Humanitarian Crises through Qualitative Study
Princewill, Chitu Womehoma
Description | Abstract | Full Text PDF | Video

Paper B. Birth control strategies in disaster prone settings in India
Asirvatham, Packiaraj
Description | Abstract | Full Text PDF | Video

Paper C. Conflicts of Child Marriage in Conflict: Who's story is heard?
Ahmad, Ayesha
Description | Abstract | Full Text PDF | Video

Session 7. Global Initiatives

Paper A. The NIH Fogarty International Center: Advancing health research in humanitarian crises
Mistry, Amit
Description | Abstract | Full Text PDF | Video

Paper B. The Nuffield Council on Bioethics: Contributing to debate on the ethical conduct of research in global health emergencies
Wright, Katharine
Description | Abstract | Full Text PDF | Video

Session 8

Keynote 2: A living laboratory? Ethics and experimentality in humanitarian innovation
Hunt, Matthew
Description | Abstract | Full Text PDF | Video

Tuesday 26 March

Session 9

Keynote 3: Consent complexities, Ebola, and the fine line between collaboration and exploitation in research conducted during public health emergencies
Nouvet, Elysée
Description | Abstract | Full Text PDF | Video

Session 10. Oral Presentations 3: Tools and Assessments

Paper A. Avoiding the Same Mistakes: Understanding and Countering Bias in the Deployment of Artificial Intelligence for Humanitarian Assessments
Kreutzer, Tino
Description | Abstract | Full Text PDF | Video

Paper B. Selected Principles for Ethical Social and Behavior Change Communication
Jacobson, Tom; LeMire Garlic, Nicole
Description | Abstract | Full Text PDF | Video

Paper C. Do approaches to the training and supervision of researchers promote or constrain ethical research practice in humanitarian settings?
Chiumento, Anna
Description | Abstract | Full Text PDF | Video

Session 11

Ethics and Humanitarian Innovation: different approaches and learning from humanitarian research
Skeels, Anna; Hytti, Laura; Guay, Joseph; Harlow, Siobán D.

Session 12

CARE Panel: Research in Humanitarian Crises
Howard, Dana; Pillai, Veena; Lin, Erin; Yotebieng, Marcel
Description | Abstract | Full Text PDF | Video

Session 13. Oral Presentations 4: Communities in Crisis

Paper A. Ethics of conducting research in crisis settings: How does Flint measure up?
Iyioke, Ike Valentine
Description | Abstract | Full Text PDF | Video

Paper B. Research with vulnerable populations in humanitarian crises: ethical challenges and overlooked areas
Barber, Rebecca
Description | Abstract | Full Text PDF | Video

Paper C. Representation of Minorities in Research: A View from the Community
Pyakurel, Sudarshan
Description | Full Text PDF | Video

Session 14. Oral Presentations 5: Researcher Training and Support

Paper A. Ethical Decision-Making in Situations of Extreme Violence: A Case Study of Syria
Robinson, Courtland
Description | Abstract | Full Text PDF | Video

Paper B. Moral distress among disaster responders: what is it, and can we do anything about it? A scoping review.
Gustavsson, Martina
Description | Abstract | Full Text PDF | Video

Paper C. The Experience of Conducting Ethical Review during the Ebola Virus Disease Emergency in Liberia
Tegli, Jemee K.
Description | Abstract | Full Text PDF | Video

Session 15

Keynote 4: Is there an upper limit to the risks that humanitarian research may legitimately visit upon research participants?
Eyal, Nir; Respondent: Passino, Kevin
Description | Abstract | Full Text PDF | Video

Session 16

Closing Remarks
O'Mathúna, Dónal; Nash, Ryan
Description | Abstract | Video

Poster Presentations

A Systematic Review of HIV Risk-Reduction Interventions among Refugees and Asylum Seekers
Ali, Rania

A systematic literature review of the ethics of conducting research in the humanitarian setting
Bruno, William; Parmar, Parveen; Haar, Rohini J.
Description | Abstract | Full Text PDF

How are moral challenges among disaster responders dealt with? The lived experiences of moral challenges and its potential consequences among disaster responders
Gustavsson, Martina
Description | Abstract | Full Text PDF

Children as Therapeutic Orphans in Humanitarian Research
Monzon, Alana
Description | Abstract | Full Text PDF

Ethical challenges when conducting research in rural, post-conflict areas: experiences from South Sudan
Mugo, Janet Wanjiku
Description | Abstract | Full Text PDF

Using Participatory Research to discuss Sexual and Reproductive Health and Rights with Urban Refugee Youth
Vernaelde, Jamie
Description | Abstract | Full Text PDF



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